I have been contacted by many mom's around the world, from southern California to Singapore... I would love to bring us all together to share recipes, stories and dealing strategies. I am setting it up and will post a link soon. If you are interested in joining our group, leave a comment with your email and I will be sure to include you.
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14 comments:
I would definitely like to join the group. My e-mail is knelso12 at yahoo dot com.
Thanks Kim. I am in the process of emailing all of the people who have emailed me with interest, that I never had a chance to respond to in the past. I will get it going and email you. Thanks!
HI Amanda,
I spoke with you regarding my son last week. I would love to be in the support group. email is "imaclemons@aol.com"
My 3 year old son also has FPIES and I would also love the opportunity to speak with others who share these experiences. My email address is gball2@rochester.rr.com. Thanks!
YES Am I too late?? I have a 4yo with FPIES. I often feel very alone! My email is katrinapelters at yahoo com.
Thanks!!
Katrina
Please include me if possible. I have a 14 mo old son who I am certain has FPIES, but our Dr. has never mentioned anything beyond common protein intolerance. I couldn't even finish your video b/c our son's challenges are still too fresh a memory. email is bskaje AT hotmail DOT com
I have a 9 month old grandson who in the last month or so has been displaying the same reaction to some foods that we saw displayed in the video of your son which you posted on utube. (Thank you so much for posting it), after watching it my daughter called me saying that she thought that she had found out what was wrong with her son. We don't have a clue where to start is there any way we could contact you. if so please email me. etrawick@cox.net
Thank for for your foresight.
I would love to be included in this! My name is Stephy and my daughter just recieved a working diagnosis of FPIES. My email is Scrappinstephy@aol.com
My 7 month old son was diagnosed with FPIES and I would love to be a part of this support group. Thank you for starting it! I feel like I have so many unanswered questions and the support of others going through the same thing with their kids would help so much. My email address is: janazinman@gmail.com
Thanks again!!
Hi! My 7 month old, Evan was just diagnosed with FPIES after a horrific event after eating custard. He was exclusively breastfed, he had rice cereal and oatmeal before, but he only threw up once after those, the dairy, he was violently ill! Your story is the reason I got Evan checked out. Thank you so much for this! My email is jenhargreaves@comcast.net I would love to be a part of a group like this!
I see that you posted this a year ago or so...but we're seeing a GI specialist for our 5 month old daughter. Today, he mentioned F.P.I.E.S., and I came across your blog when researching stuff. I am praying for your little Jacky...as a new parent it is SO difficult seeing your child in pain. Your story bring me hope for our daughter. Thank you for sharing it!
if it isn't too late please include me in your e-mails. meganljoy@yahoo.com. I have a 7 month old with FPIES. I first came across your video on youtube and couldn't finish watching b/c I was crying so much reliving our experience.
Too late?
Please email me at lakeroadnelson@gmail.com
My 13 month old was just diagnosed with FPIES to rice, soy, milk and oat.
I am hoping you still have your group going... my little angel was just diagnosed with FPIES this week, and your blog has given me hope that I can create a "normal" childhood for him.
katychka2@yahoo.com
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