We knew that it was inevitable. J would one day become curious enough to want to try a food that he knew he shouldn't eat.
This is how it went...
We were sitting at the table having dinner as a family and I decided to get up and start clearing some plates. The second that I turned my back to the table, to rinse a plate, I heard a splatter sound. I turned around slowly, afraid for what I might see and there it was, J holding D's cup. He had a puddle of milk on the floor by his chair, milk was all over his chest, dripping from his chin and even on his tongue, which he was sticking out at me saying, "I ee icky mill, keen it".
I grabbed the rag, screamed an obscenity and began scrubbing his tongue, teeth, hands and face. We were all afraid but knew that there was nothing we could do. We brushed the kids teeth, read our books and then put them to bed. J was being SUPER fussy, but he is like that sometimes so we didn't think much of it. We got him to fall asleep and we went to bed ourselves.
About 4 hours later, I heard a strange scream. It was the same scream that I had heard come out of Jack during his last episode, which was over 6 months ago. I ran into his room, smacked on the light switch and there he was, poor baby Jack all covered in puke and diarrhea (sorry to be so graphic).
I immediately called Oakland Children's and they prepared for him. We are so very thankful for the cooperation of all of the doctors and nurses on staff. They were amazing. J was stabilized and they said that he was lucky to only be exposed to a small amount of the milk. His body reacted badly but he didn't go into shock or worse. He did very well. He didn't even flinch while they inserted the IV. He just sat there, all of the nurses had to come and meet the most well behaved little patient they had seen in a long time.
We had become really relaxed about keeping "icky foods" out of Jack's reach. We took his health for granted, it was a great reminder.
We feel so blessed to be home and healthy again. :]
In this video J is pretending to drink from his IV like a straw. He is such a funny guy.
3 comments:
I too have a son with FPIES...
www.caringbridge.org/visit/littleluked
would love to chat: JillianRene@ymail.com
I know just how you feel...
Jillian
I also have an almost 4 year old son with FPIES (dairy and soy) and also know how you feel. Watching your video on You Tube was like watching my son and my heart started pounding like crazy. We adopted him at 6mths from Guatemala and they told us it was a food allergy but didn't know it was FPIES until this spring. The allergist didn't even mention the possibility of FPIES after he tested negative on the RAST test. He simply sent me home after the allergy test and told me to give him the food and see what happened. Can you believe that? Thank goodness my gut said otherwise and I started researching.
I hope things work out for Jack and he remains episode free for a long long time.
Hi! I am so grateful for your blog and want the best for little Jack and your family. I suspect that our son has FPIES and have an appt at Lucille Packard Children's Hospital 8/8/11. LPCH mentions FPIES on their site. I called Children's Hospital in Oakland (closer to our home) and the allergist I spoke with wasn't familiar with FPIES. He said that kids "aren't allergic to rice." Did you take J in Oakland, CA? I would appreciate any leads on physicians who are familiar with this in the area. Best to you and thx in advance for any response to nikitha@hotmail.com
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